This publication outlines the procedure by which Philanthrobotics followed to share data across our partner organizations. The publications offers links to relevant data sharing templates, including our own data sharing agreeement, & a repository of common data sharing documents
1. Introduction
The purpose of this publication is to share with our community the system of steps we developed at Philanthrobotics to share data with our partner organizations (at time of publishing, that includes MIT Solve and Lever for Change).
The scope of our data sharing procedures include the following:
A shared repository of common data-centric documents like data sharing agreements (link to our reposity, here)
A shared procedure of onboarding tasks that each organization who is interested in partnering with us must follow (link to a template document can be found, here)
We currently onboard organizations in a 1-on-1 fashion; meaning, organizations agree to share data with each other and Philanthrobotics around a themed area, and Philanthrobotics acts a facilitator to those discussions.
Our own data sharing agreement, that is used by partner organizations in our procedures, in addition to other documentation
Sharing Data Between Organizations
One of the ways that we have been able to share data across organizations is through the ability to make shared repositories using Github.
One of our first repositories is that of the data sharing agreements. Philanthrobotics members noticed that many organizations do not have an easy way to deploy and share the infrastructure around how their organization moves data. Some organizations do not have this infrastructure at all.
We thought…by providing such infrastructure as a public good, as well as providing our own example, organizations could find their own way to package their data sharing agreement.
To date, we 19 organizations sharing data in our repository. They include data sharing agreements from:
Education | Government | Life Sciences |
---|---|---|
Harvard University | CDC | CZI Biohub |
LISD | Chicago City Government | Vivli |
MRCT | NCATS N3C | NIAAA |
University of Florida | NCDHHS | NICHD DASH |
University of Michigan | Texas State | NIDDK |
VUB |
We also include how-tos, tutorials, and other resources we call meta-resources from:
Meta Ressources |
---|
Model DUA Agreements - MIT |
UNC DUA Guidance |
University of Rochester Slides |
Data quality
Protection and privacy
4. Roles and Responsibilities
Governance council
Data stewards
Data owners
Users
Governance Documents
5. Data Standards
Classification
Naming
Format
6. Data Quality
Metrics
Assessment
Remediation
7. Privacy and Security
Access controls
Protection measures
Incident response
8. Lifecycle Management
Creation
Storage
Retention
9. Compliance
Requirements
Auditing
Reporting
10. Integration
Processes
Standards
11. Training
Modules
Frequency
12. Monitoring
Metrics
Review meetings
13. Resolution
Issue identification
Escalation
Resolution